As March 21, marks World Down Syndrome Day, it is an opportune time to shine a light on the strengths and diverse capabilities of people born with this genetic condition
MAHERA KANTAWALLA
My work as a healthcare professional supporting young individuals with disabilities has provided me with opportunities to see the world through a different lens. It has taught me that our differences make us human, and that every person, with and without a disability, has a story worth telling.
As I write this article, I am reminded of Rishi (name changed), a six-year-old boy with curly hair, sparkling eyes and the most infectious smile. Rishi has Down Syndrome, which means he faced some challenges, especially with his motor skills. His school conducted a swimming programme for children annually. Although Rishi loved the water, he was unable to keep up with other children during the swimming classes. But his mother was determined to give Rishi the extra support and practice he needed to build his muscle strength and stamina to swim effortlessly. They therefore started coming for aqua therapy sessions. When Rishi first began this, he struggled to keep his body afloat, breathe in water, and coordinate movement of his arms and legs. But he persevered. When he would find an exercise or activity hard, I could hear him take a deep breath and say to himself, āI am strong. I can do this!ā words he had heard his mother say to him since he was a baby. Within months, Rishi was swimming across the pool. His warmth, resilience, and determination reminded everyone that with a heart full of hope, anything is possible.
What is Down Syndrome?
Down Syndrome, caused by the presence of an extra chromosome 21, affects approximately one in every 800 births in India. This genetic condition is characterised by distinct physical features and can lead to a range of developmental challenges like speech, motor and cognitive differences and health issues such as heart defects. But they do have their own strengths:
Exceptional social skills: Known for their warmth, empathy, and genuine approach to interactions, individuals with Down Syndrome often excel in social settings.
Resilience and determination: Individuals with Down Syndrome often demonstrate extraordinary resilience. From an early age, they face various challenges, but many learn to overcome these hurdles.
Creativity and artistic expression: Many individuals with Down Syndrome excel in artistic pursuits. Sania Khimji, Jijo Das, Gopikrishnan are among the notable artistes, with Down Syndrome in India who are gaining recognition for their talent.
Strong work ethic: Individuals with Down Syndrome are dedicated employees who take immense pride in their work. Their loyalty and a strong work ethic is helping them find rewarding roles in various sectors, from hospitality to retail.
Athleticism: Participation in sports and fitness not only promotes their health but also provides opportunities for personal achievement. Athletes like Madhav Suresh inspire many to see the potential in every individual, regardless of their differences.
Support from families, educators, and communities is vital for the success of individuals with Down Syndrome. Organisations across India are working hard to provide resources, training, and advocacy to help create supportive environments. Let us also individually take responsibility to increase our knowledge about it and commit to building a society where diversity is recognised as a strength.
(The writer is a senior occupational therapist at the Sethu Centre for Child Development and Family Guidance, Goa)
